During May, we are posting a series of blogs about patient and public involvement as part of the NIHR’s Be Part of Research campaign to mark this year’s International Clinical Trials Day.
Our Patient and Public Involvement (PPI) team are excited to launch our Patient Involvement Network (PIN) to help us to improve our research, maximise research benefits to patients and help to determine our research priorities for the next five years.
Patients and members of the public may wish to be involved in research but they may not always be able to commit time to regular meetings or the opportunity may not be there. The Patient Involvement Network provides members with more flexibility by keeping them informed about different health research projects that they may be interested in. The ways that our patients and members public get involved in our research are by:
- Advising on research studies in specific areas.
- Reviewing research study documents e.g. Patient Information Sheets.
- Advising on general research issues e.g. transparency.
- Participating in events.
- Delivering training.
- Completing surveys
Our volunteer patient and public research advisors support and advise researchers about how best to involve and engage patients and the public in their research from very early stages through to completion. They do this by sharing their experiences to help our researchers devise research studies and trials that are fit for purpose and deliver on what patients and communities need.
You don’t need any experience of research to be part of the PIN, you just need:
- an enthusiasm for health research,
- to be a resident or work in Lambeth, Lewisham or Southwark, and/or
- to have been a patient of Guy’s and St Thomas’ in the last five years
It’s important that the membership of the group reflects the diverse population of our community. We welcome applications from all but are particularly seeking applications from groups that are underrepresented.
To apply to join the PIN please complete this survey so we know which areas of research to contact you about.
You can leave at any time and there is no obligation to respond to any requests that we send.
Clive Moore, Research Advisory Group Chair said:
“Why are decisions about you made by people who don’t always look or think like you? The Patient Involvement Network is your chance to create diversity and let researchers know what you want for you. There is no commitment -dip in and out when a subject interests you when you have time and want to have your say. Just receive information on research you are interested in and make your voice heard.”