On Friday 15th December 2016, the Research Design Service (RDS) hosted a training session on Implementing Patient & Public Involvement in Research in collaboration with the Biomedical Research Centre (BRC).

The training was delivered by trained members of the Patient and Public Advisory Group and aimed to

  • Provide an understanding of what effective Patient and Public Involvement (PPI) is and is not in the context of research
  • Identify how patients and the public can be involved at each stage of the research cycle
  • Consider the practical planning for effective PPI
  • Understand what resources and support structures exist in the RDS and BRC.

There were 17 delegates at this session which included researchers from a range of fields such as physiotherapy, cardiovascular nursing and  primary care, based at institutions all over London including St George’s Hospitals NHS Foundation Trust and Imperial College as well as Guys and St Thomas’ and Kings College London.

Dr Veline L’Esperance, an Academic Clinical Fellow/GP Registrar from King’s College London said “The workshop provided valuable and practical insights into effectively involving lay people in the research process, from setting research priorities and designing protocols to innovate ways for PPI in dissemination. The session was interactive and encouraged meaningful dialogue about PPI.”

Alan Quaterman, one of the lay trainers said “Last week I attended my cancer support group. Being so close to Christmas, it was a terrible turnout. Only 5 patients, our Specialist Nurse and the guest speaker, on the ‘Emotional Impact of Cancer’. One of my fellow patients was a businessman, who said he felt he had no control, others did things to him; he was passive. He was used to making his own path through life. He felt helpless and depressed. Perhaps that’s why I volunteer for everything, to get past my helplessness and to help towards better outcomes. I think I represent them and give them a voice. Helping Researchers is very satisfying, and hopefully useful to the researchers”

Jonathan Paylor, PPI advisor from the Research Design Service team said “It works well because it is patient led. The patient trainers draw on their own experiences which helps to bring PPI alive and draw attention to the human side of PPI”.

Further sessions are planned for February 2017, March 2017, June 2017, August 2017, October 2017 and December 2017.

For more information on upcoming training dates please click here or contact Claire O’Neill, Patient and Public Involvement Project Manager claire.oneill@gstt.nhs.uk 0207 188 7188 extension 53524 or the Research Design Service team PPI@rdslondon.co.uk 020 7848 6226 www.rds-london.nihr.ac.uk/Patient-Public-Involvement.aspx