Patient and Public Involvement (PPI) means actively working in partnership with patients and members of the public to plan, manage, design and carry out research. It is “Research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them”. INVOLVE
It is distinct from participation (e.g. recruiting patients to clinical trials) and engagement (e.g. disseminating research findings to patients).
Anyone can be involved in research.
- Members of the public (someone who is not a health professional)
- Community Groups e.g. multi-faith groups
- Former patients/Survivors
- Patient support groups e.g. Terrence Higgins Trust
- Family members; parents, partners, young people